February 12, 2016

STAT-Harvard Poll: Americans Say No to ‘Designer Babies’

(STAT News) – Most Americans oppose using powerful new technology to alter the genes of unborn babies, according to a new poll — even to prevent serious inherited diseases. They expressed the strongest disapproval for editing genes to create “designer babies” with enhanced … Read More

February 11, 2016

Improving the Informed Consent Process in International Collaborative Rare Disease Research: Effective Consent for Effective Research

(European Journal of Human Genetics) – The increased international sharing of data in research consortia and the introduction of new technologies for sequencing challenge the informed consent (IC) process, adding complexities that require coordination between research centres worldwide. Rare disease … Read More

February 10, 2016

IVF Industry Criticized for ‘Misleading Claims, Aggressive Marketing’

(Australian Broadcasting Co) – Insiders in the IVF industry have criticised clinics for using misleading claims and aggressive marketing in the increasingly cut-throat, multi-million dollar sector. Consumer watchdog the ACCC is currently reviewing dozens of IVF clinics amid mounting complaints … Read More

February 9, 2016

Unethical Cancer Trials in India May Have Killed 254 Women, Claims American Doctor

(Scroll.in) – Cervical cancer is recognised as one of the leading causes of cancer-related deaths among Indian women, killing an average of 72,000 women every year. Since 1997, however, at least 254 such deaths may have occurred because Indian women … Read More

February 5, 2016

A Doctor Convicted of Murder for Prescribing Exorbitant Amounts of Painkillers That Left Three Patients Dead Could Get Life in Prison

(Associated Press) – A doctor convicted of murder for prescribing “crazy, outrageous amounts” of painkillers that left three patients dead could get life in prison at her sentencing scheduled for Friday. Dr. Hsiu-Ying “Lisa” Tseng’s second-degree murder conviction in October … Read More

Recommended Reading