September 22, 2017

People with Disabilities often Fear They’re a Burden. That’s Why Legal Assisted Suicide Scares Me.

(Vox) – I was born nearly 55 years ago with spinal muscular atrophy, a congenital, progressive neuromuscular weakness akin to muscular dystrophy. Without extensive daily interventions — hands-on (and expensive) assistance with bathing, dressing, toileting, and feeding, as well as … Read More

September 12, 2017

People with Developmental Disabilities Face Healthcare Disparities

(UPI) – Research shows individuals with developmental disabilities experience significant disparities in healthcare quality, access, status and unmet needs. Researchers at The Ohio State University conducted a telephone survey of 42,876 adults and 10,122 proxy interviews for children under 18 … Read More

August 16, 2017

China’s Embrace of Embryo Selection Raises Thorny Questions

(Nature) – Early experiments are beginning to show how genome-editing technologies such as CRISPR might one day fix disease-causing mutations before embryos are implanted. But refining the techniques and getting regulatory approval will take years. PGD has already helped thousands … Read More

August 15, 2017

“What Kind of Society Do You Want to Live in?”: Inside the Country Where Down Syndrome Is Disappearing

(CBS News) – With the rise of prenatal screening tests across Europe and the United States, the number of babies born with Down syndrome has significantly decreased, but few countries have come as close to eradicating Down syndrome births as … Read More

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