Iceland’s Ethical Debate: Should DNA Donors Be Told if They Are Predisposed to a Deadly Disease?
July 11, 2018
(Canadian Broadcast Co) – If you knew someone was genetically predisposed to cancer, would you tell them? Dr. Kari Stefansson would. The Icelandic neurologist is the CEO of deCODE Genetics, a company that has collected the DNA of nearly half the country’s population. Using the company’s data, he said that he can pinpoint 1,600 people at risk of deadly cancers in Iceland. The government, however, won’t let him.