To Advance Medicine’s Future, the NIH Tries to Win the Trust of Communities Mistreated in the Past

September 22, 2017

(STAT News) – The National Institutes of Health would like six vials of your blood, please. Its scientists would like to take a urine sample, measure your waistline, and have access to your electronic health records and data from the wearable sensor on your wrist. And if you don’t mind sharing, could they have your Social Security number? It is a big ask, the NIH knows, and of an equally big group — the agency eventually hopes to enroll over 1 million participants in the next step of what four researchers referred to in a 2003 paper as “a revolution in biological research.”

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