Drug Puts a $750,000 ‘Price Tag on Life’

August 2, 2017

(NPR) – But that common hope has taken them down different paths: In April, Gundy’s child, who is on private insurance, began getting the drug Spinraza, which costs $750,000 for the initial year of treatment. Chaffin’s child, a Medicaid enrollee, did not, as his state regulators debated whether to offer it to children like him who use ventilators to breathe. Across the country, similar stories are playing out as private insurers and already-squeezed state Medicaid programs wrestle with what, if any, limits to place on patients’ access to break-the-bank drugs — weighing the needs of the ill against budget realities.

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